When we lived in the Chicago suburbs, I worked as an
aide in a retirement home, on the fourth floor health care unit. I led activities, which were simple ones, because most
of the patients had some degree of dementia. At the end of the day I
was required to fill out a form provided by the state, reporting each
patient's participation. The rows were labeled with
things like Music, Crafts, Reading and Nature.
The most ambiguous item was
Socialization. There were just two options: a check for “yes,” a
dash for “no.” I was required to mark it and encouraged to be
very liberal: check yes if the patient is breathing. I was told
that you never knew, that the person might be socializing with him or
herself. Or with someone in a dream. Or you simply may have missed a
meaningful movement of their eyes.
The most difficult patient to judge was
Dorothy. Her dementia was among the worst, and her behavior was
unpredictable. The head nurse told me, “Don't stand too near her;
she sometimes hits people.” This made Dorothy a liability on the
ward. They kept her wheelchair next to the nurses' station all day.
She had lost the ability to speak, and did not move her head, which
made her look very sullen.
The genuinely sociable patients spent
the day in the dining room seated at tables of four. Some of them
could stand and poke around the room with their walkers, but most
stayed seated all day. They especially liked Bunco and could still
toss the dice from their bent fingers. The ladies loved getting their nails
painted, choosing colors like Fire Engine Red and Passion Pink.
These residents were mostly from Cicero, and a few had seen Al Capone himself. Nearly all had heard Benny Goodman live.
They remembered Marshall Fields at its most magical, and were ardent
White Sox fans. But the topic that animated them most was Friday
nights at the Aragon ballroom. They really did use the phrase “the
good old days” for it. One woman, who could barely put together a
sentence otherwise, told me she had met her husband on the dance
floor. “He was woo-hoo,”
she said, with a breathy treble on that last syllable. I regularly
played big band records and took these ladies by the hands for a
dance. They couldn't leave their chairs, but they could
bob their shoulders and swing their arms for a little fun. On those
days, everyone within earshot got a check mark for Music.
Despite the cheery moments, decay
loomed on the fourth floor like the wet ends of cut flowers. There
was a fecal smell from poor bathing; an odor like horses from old
teeth. There were smiles, but also complaints, some irrational, some
fair enough. I was once chided for lifting the window shadows to let
in the morning sun. I thought it would cheer them, but they told me
it hurt their eyes.
Parked at the nurses' station, Dorothy
couldn't hear the music. She couldn't tell what she remembered, and
had no amusing qualities or ability to exchange basic pleasantries.
She had a folkloric face, large and square with a sharp nose,
long hairs on her cheeks, a chin that angled outward rather than
curving nicely from her bottom lip. Her forehead never relaxed. Her
shoulders hunched to the level of her ears so that she could not look
up into faces. Even so, you could tell she'd been a tall woman. Her
hands were mannishly large. Her feet were unattractively long. She
looked, in fact, a bit sinister, an impression that was reinforced
when she exasperated the staff by suddenly swiping her hand and
spilling juice, with a scowl that made it seem on purpose.
One day a fellow aide told me that
Dorothy had, for decades, been a very active member of the Salvation
Army. The image came to my mind (granted, more Victorian than
post-Depression) of a severe woman in a cape swinging a schoolmarm's
bell. I saw black-booted feet planted on a cold walkway of snow. I
saw her staring down people who averted their eyes and walked on.
This was all I could tell of the soul of Dorothy.
The day finally came, the inevitable
pronouncement on ninety-three years: Dorothy was put on hospice. It
had been delayed by a strong heart and a daily dose of large pills.
Now the nurse brought them to her bedside in a paper cup the size of
a communion glass. The juice was poured directly into her mouth, and
the droplets that hovered on her lips were dabbed away. Witnessing
this, I checked 'yes' for socialization.
Her slippers were empty on the floor,
permanently stretched in the shape of her feet. The hospital blanket
stayed molded over her long form. Her hands, streaked with veins like
swollen rivers, stayed still. Had she even wanted to, she couldn't
turn her head to see the bits of sunlight that slipped through the
edges of the closed shades, or the gifts that had accumulated on the
windowsill: a potted plant, stuffed animals, thinking-of-you
cards.
One day I tested what was in her line
of vision. With my face next to hers, the only thing I saw was the
clock on the wall. I considered taping up her cards or digging an
old poster out of the activities closet. I wondered what Dorothy
would like to see. The question, I realized, was ultimately, Who was
she? What would speak to this unyielding captain at her watch?
People active in the Salvation Army
know all the best Bible verses, so I decided to write one on a card
for her. In the office I found cardstock and a marker, and wrote out
a portion of Psalm 23:
The Lord is my Shepherd, I shall not
want
He maketh me lie down in green
pastures
He leadeth me beside still waters
He restoreth my soul.
I put the over-bed table across her
straight body and made sure it was at eye level. I folded the
cardstock into an inverted V so that it stood up. I took off her
eyeglasses and cleaned them; she blinked her blue-gray eyes and did
not flinch. The glass was badly smudged from neglect, which in
retrospect explains a lot.
Dorothy's eyes slowly scanned the
words. Or did I only imagine it? Was it pretense on my part, taking
credit for a good deed? Maybe, like all those check marks, I was
falsifying what I saw. But no, there it was again; I was sure of it:
her forehead relaxed a little and she really seemed to be reading.
A few days later I arrived at work and
saw two men pushing a trolley out of Dorothy's room. On it was a
canvas bag the length and girth of a body. They wheeled it toward the
elevator. Nurses stood aside. The door slid shut.
It's a strange thing to walk into a
room and see a bed that has just been stripped. It's strange to
gather up hand creams, a hairbrush, stale candies. To open a closet
and see blouses hanging there and a pair of dress shoes on the floor.
To stand in a room that is large with absence and to consider that a
life had been there, a person incapacitated but able to see a promise, even in dim light, and perhaps discover that,
on no strength of her own, she could still draw near to someone who
had dared draw near to her.